Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Monday, February 4, 2013

The Punk Syndrome

Music.  Everyone has their own tastes and preferences. I am a country music fan, but do enjoy listening to all types of music.

 Here is a review of a documentary about a punk band.  OK, there are lots of punk bands, and no, I do not usually listen to punk music.  What caught my eye about this review (or my ear) is that this band is composed of two individuals with autism and two individuals with down syndrome.  How cool is that?  Rock on guys and much success with your musical journey.


The Punk Syndrome – review




the punk syndrome

This attractive Finnish film brings to mind the Finnish director Aki Kaurismäki's Leningrad Cowboys Go America, a zany comedy about a terrible Finnish rock group touring the States. The difference, however, is that Kärkkäinen and Passi's film is a documentary about a real punkquartet called Pertti Kurikka's Name Day, a genuine punk quartet made up of the autistic duo of Pertti Kurikka (lead guitar) and Karl Aalto (singer), and the Down's syndrome duo of Sami Helle (bass) and Toni Välitalo (drums). Sami and Toni are younger and more cheerful than Pertti and Karl, whose songs are often angry and aggressive (eg I Need a Little Respect and Dignity in My Life; I Hate the World). But all four have a suitable punk wildness

The film presents them in warm domestic settings, on tour, making their first overseas visit (including an amusing gig on Hamburg's Reeperbahn), and cutting their first DVD. Nobody patronises them or laughs behind their backs, and they rightly take their art seriously. A very likable, relaxed film.

Be gentle.

Sunday, January 6, 2013

Bury My Heart With Tonawanda

Powerful.  It took me several days of reflection on these amazing words spoken in these film clips.  I am in awe of the story of John Hamilton., faceless corn husk dolls, and acceptance.  Produce by a young man with Aspergerger's Syndrome, the film Bury My Heart with Tonawanda, tells a story of acceptance and inclusion.    Take a moment to view a preview of Bury My Heart With Towanda.  You can learn more on the Facebook page for Espocinema.  And you can check out this clip on You Tube.




Let me know your thoughts.

Be gentle.

Monday, April 2, 2012

World Autism Awareness Day 2012. Light up the Blue!

So many lives affected by AUTISM.  Scary word, huh?  And even scarier, the number of children diagnoses with autism on a daily basis.



Today is World Autism Awareness Day 2012.  Let's bring awareness to our family members that have autism.



What Is Autism?

What Is Autism? What is Autism Spectrum Disorder?

 Autism spectrum disorder (ASD) and autism are both general terms for a group of complex disorders of brain development. These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors. They include autistic disorder, Rett syndrome, childhood disintegrative disorder, pervasive developmental disorder-not otherwise specified (PDD-NOS) and Asperger syndrome. ASD can be associated with intellectual disability, difficulties in motor coordination and attention and physical health issues such as sleep and gastrointestinal disturbances. Some persons with ASD excel in visual skills, music, math and art.
Autism appears to have its roots in very early brain development. However, the most obvious signs of autism and symptoms of autism tend to emerge between 2 and 3 years of age. Autism Speaks continues to fund research on effective methods for earlier diagnosis, as early intervention with proven behavioral therapies can improve outcomes. Increasing autism awareness is a key aspect of this work and one in which our families and volunteers play an invaluable role. Learn more …

How Common Is Autism?

Autism statistics from the U.S. Centers for Disease Control and Prevention (CDC) identify around 1 in 88 American children as on the autism spectrum–a ten-fold increase in prevalence in 40 years. Careful research shows that this increase is only partly explained by improved diagnosis and awareness. Studies also show that autism is three to four times more common among boys than girls. An estimated 1 out of 54 boys and 1 in 252 girls are diagnosed with autism in the United States.
By way of comparison, this is more children than are affected by diabetes, AIDS, cancer, cerebral palsy, cystic fibrosis, muscular dystrophy or Down syndrome, combined.* ASD affects over 2 million individuals in the U.S. and tens of millions worldwide. Moreover, government autism statistics suggest that prevalence rates have increased 10 to 17 percent annually in recent years. There is no established explanation for this continuing increase, although improved diagnosis and environmental influences are two reasons often considered. Learn more …

What Causes Autism?

Not long ago, the answer to this question would have been “we have no idea.” Research is now delivering the answers. First and foremost, we now know that there is no one cause of autism just as there is no one type of autism. Over the last five years, scientists have identified a number of rare gene changes, or mutations, associated with autism. A small number of these are sufficient to cause autism by themselves. Most cases of autism, however, appear to be caused by a combination of autism risk genes and environmental factors influencing early brain development.
In the presence of a genetic predisposition to autism, a number of nongenetic, or “environmental,” stresses appear to further increase a child’s risk. The clearest evidence of these autism risk factors involves events before and during birth. They include advanced parental age at time of conception (both mom and dad), maternal illness during pregnancy and certain difficulties during birth, particularly those involving periods of oxygen deprivation to the baby’s brain. It is important to keep in mind that these factors, by themselves, do not cause autism. Rather, in combination with genetic risk factors, they appear to modestly increase risk.
A small but growing body of research suggests that autism risk is less among children whose mothers took prenatal vitamins (containing folic acid) in the months before and after conception.
Increasingly, researchers are looking at the role of the immune system in autism. Autism Speaks is working to increase awareness and investigation of these and other issues, where further research has the potential to improve the lives of those who struggle with autism. Learn more …

What Does It Mean to Be “On the Spectrum”?

 Each individual with autism is unique. Many of those on the autism spectrum have exceptional abilities in visual skills, music and academic skills. About 40 percent have average to above average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and “atypical” ways of viewing the world. Others with autism have significant disability and are unable to live independently. About 25 percent of individuals with ASD are nonverbal but can learn to communicate using other means. Autism Speaks’ mission is to improve the lives of all those on the autism spectrum. For some, this means the development and delivery of more effective treatments that can address significant challenges in communication and physical health. For others, it means increasing acceptance, respect and support.
Resources: We are pleased to offer many resource-packed tool kits for free download (here and here), including the 100 Day Kit for families who have a child recently diagnosed with autism. For still more information and resources please see our Video Glossary and FAQs and special sections on DiagnosisSymptomsLearn the Signs,TreatmentYour Child’s RightsAsperger Syndrome and PDD-NOSThese resources are made possible through the generous support of our families, volunteers and other donors.


I have met quite a few families of children with Down Syndrome whose children also have autism.  It can affect all of our families.  Help increase acceptance, respect and support for families affected by autism.

Be gentle.