Showing posts with label Abilities. Show all posts
Showing posts with label Abilities. Show all posts

Monday, April 29, 2013

Meaningful employment for those with disabilities?

My son is not old enough for a full time job.  He is still a full time student.  But a question that I am sure must nag all parents who have a child with a disability is how will my child support themselves when they are older?  We all also want to enjoy our career, so how do I make sure he has a career that he actually enjoys and feels like a productive member of society?  He is an interesting article I found this morning.


Finding meaningful employment a challenge for those with developmental disabilities


April 29, 2013
Ryan Banning looks through one of his vending machines at the Lawrence Airport. Banning has operated his own vending machine business, Ryan's Vending Services, for more than a decade. Banning has Down syndrome, a condition that can limit employment options.
Ryan Banning looks through one of his vending machines at the Lawrence Airport. Banning has operated his own vending machine business, Ryan's Vending Services, for more than a decade. Banning has Down syndrome, a condition that can limit employment options.
Lawrence man Ryan Banning is in every sense of the word an entrepreneur. For more than a decade, Banning, 36, has operated his own business, Ryan’s Vending Service, managing a dozen or so vending machines in Lawrence.
He’s always looking to expand, he said as he loaded the soda and snack machines at the Lawrence Municipal Airport recently.
And the bottom line for Ryan, who has Down syndrome, is that he enjoys the work and turns a profit.
“He’s earning, he's paying taxes," said Martha, his mother, who helped conceive of the business idea when Ryan finished high school. "It's been a really good fit for him."
'School to the couch'
Ryan needs a little help with his small business. A job coach drives him to pick up supplies at Sam's Club and to several local locations, including Visiting Nurses Association and a Kansas University fraternity. Ryan’s father, Bob, helps obtain the vending machines and supplies, and runs the financial side of the business.
While Ryan has found work that he enjoys, he's the exception for those with developmental disabilities, said Judith Gross, a research associate with the Kansas University’s Beach Center, which advocates for those with disabilities.
“They graduate from school to the couch,” missing out on socialization and a general sense of self-worth, Gross said. “Work is an important part of everyone’s life.”
And it's the type of work that makes a big difference, according to Rocky Nichols, executive director of the Disability Rights Center of Kansas.
While many with developmental disabilities find sub-minimum wage work in very structured workshop settings, that shouldn't be the goal, Nichols said. The focus should be on employment in a typical job setting where those with developmental disabilities work alongside those without disabilities.
But finding jobs, and employers willing to work with those with developmental disabilities, isn't easy.
According to a 2011 report from the National Association of Councils on Developmental Disabilities, only 14 percent of adults with a developmental disability are employed in the competitive workforce.
Overland Park woman Tracey Dickey knows the struggles firsthand. Her son, Cole, a student at Blue Valley Northwest, has one year left in school, and she’s been fighting for the past several years to find Cole a job when when he graduates.
“It’s scary,” she said. “He has one year left, and then what? It keeps me up at night.”
Tracey and her son have explored a variety of options, such as supported employment programs, but such programs have waiting lists. And her son has limitations, such as not being able to work a full shift.
“The job market is tough,” she said. “And he’s competing with people who probably can pull an eight-hour shift.”
FEAT
Gross and the Beach Center launched Family Employment Awareness Training, or FEAT, in 2010 to help families like Cole’s navigate the complex social service of job coaches, supported employment programs and other benefit services. At trainings for those with disabilities, Gross invites those such as Ryan and his family to speak to other families facing hurdles.
The biggest hurdle, Gross said, often is convincing families that those with a developmental disability can and should work in a meaningful job.
There will be struggles, and it takes a dedicated support system. But Martha Banning said the work is well worth it for Ryan and his whole family. “It’s so important to his quality of life,” she said.
Martha’s advice to other families is to keep fighting, find work that your child enjoys and connect with other local families facing similar barriers.
Ryan, meanwhile, has become accustomed to the perks of operating his own business. He likes to finish his 20 to 30 hours of work early in the week if he can and cut out by Thursday, enjoying a long weekend.
While he performs all the day-to-day work of the business, his goal is to eventually hire employees so he can focus on overseeing the operation.
“Someday, I want to be the boss,” he says.
As only the boss can do, he’s quick to offer guests a soda from his machine.
“It’s on me,” he says.


Be gentle.

Friday, April 12, 2013

OH NO! It happened again. A family is denied membership because their child has Down Syndrome.

I can not believe this.  Well, maybe I can.  A family id denied membership to their local gym because their teen happens to have Down Syndrome.  Really?  You have got to be kidding. Read on to learn about this family.  Do we really need to "point out" that we have a child that is different?  I think not.



Family: Teen with down syndrome turned away from gym



Posted: Apr 10, 2013 3:39 PM PDTUpdated: Apr 10, 2013 3:50 PM PDT
(WMC-TV) - A Mid-South family with two children says they tried to join a fitness center earlier this week but were turned away because the staff was not trained to deal with one of their children, who has Down Syndrome.
"After we purchased our family membership, we could only bring three-quarters of our family," said mother Sherrie Cates.
No matter the day or circumstance, 13-year-old Mollie Cates is a happy young lady.
Her parents said they were shocked at how they were treated when they took Mollie and her older sister to Ripley Family Fitness Center Monday.
"We got turned away because of her," said father Kevin Cates.
Kevin and his wife said it was the first time all four family members had been to the gym together.
"Their brochure says they don't turn anyone away, anyone can come in. But, we were met at the door and they said their staff isn't trained to deal with anyone like Mollie," said Sherrie.
Sherrie said her daughter is in a regular class at school and even participates in physical education. She said there is no reason she should not be able to go to the gym.
"We were never given a chance to say, 'We'll be with her. This is how we can work with her.' We were just told, 'No, there's no one here who can work with her,'" said Sherrie.
The gym is owned and operated by the city of Ripley.  City attorney Steve Crain said the gym has never come in contact with a customer with Down Syndrome.
Crain says they are working now on ways to accommodate Mollie Cates.
"She needs to be strong and healthy just like everyone else. I want her to have that chance," said Kevin.
City Attorney Steve Crain says the Cates family never included Mollie's name on the official application, which also requires a doctor's statement for membership.
Crain calls the whole thing a misunderstanding.
Copyright 2013 WMC-TV. All rights reserved.



What do you think?

Be gentle.

Friday, January 18, 2013

Fact or fiction. Down Syndrome is not a disease

FACT

According to the National Down Syndrome Congress.......

Down Syndrome is not a disease.  Down Syndrome is a chromosomal variation and has no known cause or cure.

Enjoy this video from the National Down Syndrome Congress



Be gentle.

Sunday, January 13, 2013

New program in Connecticut for children with Down Syndrom

A new program has been opened at Connecticut Children's Medical Center for families of children with Down Syndrome.  I love to see these resources available to families.

New Down Syndrome program


New comprehensive Down Syndrome program

Updated: Friday, 11 Jan 2013, 6:46 PM EST
Published : Friday, 11 Jan 2013, 6:46 PM EST

New Down Syndrome program
HARTFORD, Conn. (WTNH) -- It is a one of a kind program and Connecticut Children's Medical Center came up with it. It's a comprehensive outreach for families with children with Down Syndrome.
Louisa Knapp is among the hundreds in Connecticut born with down syndrome, a genetic disorder that affects a child's development.           
Louisa's family is among a growing number discovering the newly launched Comprehensive Down Syndrome Program at Connecticut Children's Medical Center.
"How's your hearing," asked Dr. Greenstein.
Dr. Robert Greenstein heads up this first of it's kind program in the state.
"This would make available in a timely manner the kind of services that are necessary to improve the health of the child and therefore reduce the anxiety among the family," said Dr. Greenstein.
A huge void until now, with services specifically tailored to address the special needs of a down syndrome patient which can be misdiagnosed, delaying treatment.
"Can I see your teeth please," asked Dr. Greenstein.
For Louisa, a stuffy nose led to surgery after Dr. Greenstein recommended a specialist.
"He managed for her to be seen by someone who is now with this program who is very comfortable with kids with down syndrome and understood the unique needs and she had her tonsils and adenoids removed and it was life changing for her," said Sheryl Knapp, Louisa's mother. 
     
At this visit, the concern is Louisa's hearing, a common problem among down syndrome patients.
"She often says I can't hear you or say that again. I don't know if she really can't hear or if she's just saying it," said Knapp.
Getting her hearing tested with an audiologist is now on Louisa's schedule.
"There's an expectation that you have to find out how much you can but it also comes with an emotional upheaval as well for families," said Dr. Greenstein. 
      
What's offered here is a big relief for families like Louisa's, looking for a central resource to meet all the needs for children with down syndrome.



New Down Syndrome program
Be gentle.

Monday, December 3, 2012

Straight Talk with Chris Burke

One of my heroes writes a monthly column for the National Down Syndrome Society Newsletter.  I love reading his words and seeing the wonderful photos he posts.



Straight Talk with Chris Burke

Featured ImageNDSS Goodwill Ambassador Chris Burke is best known for his role as Corky Thacher on the hit ABC show "Life Goes On." Chris works in the NDSS office, where he is a member of the staff. In this monthly column, Chris offers advice and perspective to fellow self-advocates.

Here is his December.


Happy Holidays



I would like to wish all of you happy holidays, seasons greetings, and a happy new year! I just can’t believe it is finally here. Time flies by when you’re having fun. I have the feeling that 2013 is going to be a great year and I can’t wait.
I am very lucky to have my parents, family, relatives, and friends to share the holiday season with. I love spending time with my parents and my family and this year I will be celebrating with my sisters, Ellen and Anne, and my brother, J.R. It’s always good to see them. 
This is the time to remember being together and being there for each other. It is also the time to be thankful for the good things in our life. 
We should always try to support and encourage others who are in need our help, especially during the holidays. We should donate clothing, food and drinks, and our time to help others whenever possible.
Happy holidays and have a great new year!

Be gentle.

Friday, November 30, 2012

Becoming a champion! and rocking his extra chromosome!

What a happy ending to a story of a young man I have been following for a while now.  Kids with Down Syndrome need to be given the opportunity just like their typical peers.  What an inspiration.  Check out the video!

Underdog on top: Player with Down Syndrome wins Ishpeming team $25,000 and a trip to New York




Sports Illustrated Video: "Heart of the Team"
The Ishpeming High School football team, which capped an improbable run by winning the Division 7 state championship last weekend, isn't headed to Disney World.
Instead, the team is headed to New York City for the annual Sports Illustrated Sporstman of the Year ceremony.
The Hematites wouldn't be heading there without Eric Dompierre, a 19-year-old kicker with Down Syndrome who was almost kept off this year's team due to age limits set by the Michigan High School Athletic Association.
His father fought the inflexible rule all summer, and in August, the MHSAA finally approved a waiver allowing Eric to play this season as an extra-point specialist.
Sports Illustrated documented his inspirational story -- from the off-field drama to on-field bonds with teammates -- for its annual "underdogs" contest, allowing viewers to vote for his or other stories online.
Earlier this month, just days before they won a state championship, Ishpeming won the magazine contest, earning a trip to New York and a $25,000 grant.
Instead of flying 10 players to the December 5 awards ceremony, as originally planned, Sports Illustrated reportedly agreed to pay for a charter bus from the Upper Peninsula to New York so that the whole team can travel, and local boosters are raising additional funds for the full-team trip.
"The town has really behind this team and behind our efforts for Eric to play these last few years," Dean Dompierre told SI. "We needed signatures. We needed letters written and the town not only recruited other people from the state, but people around the country."
Eric's age-waiver wasn't the only adversity that the Hematites faced en route to their championship. Coach Jeff Olson lost his son to suicide over the summer, and the brother of starting quarterback Alex Briones died last year.
But Ishpeming overcame those hardships -- not to mention a size mismatch -- to defeate Detroit Loyola in the state championship. So much for "underdogs."



Be gentle.


Saturday, November 10, 2012

Rocking his extra chromosome, Eagle Scout style

I love stories of success.  Especially when those successful people rock their extra chromosome like Adam.  Read on about this inspiring young man and the people that support him.


Determination leads Frankfort teen to Eagle Scout rank





Adam Sekula loves to play his guitar and his drums and listen to the Beatles — John Lennon is his favorite, and he loves his dog, Maxine.


The 16-year-old is not so fond of doing chores around the house or tackling his homework.
His mom, Marlene Sekula, said he tells her she’s “tough,” but said Adam doesn’t put up too much of a fuss.
What sets Adam apart from other teens his age are his accomplishments as a Boy Scout.
The Lincoln-Way East High School sophomore recently earned the rank of Eagle Scout, earning 63 merit badges, proudly displayed on a sash across his chest.
A 64th badge is in the works.

Adam Sekul16 Frankfort recently completed his Eagle Scout project. | Brett Roseman~Sun-Times Media


“He’s earned the most merit badges of anyone in his troop, past or present,” Marlene Sekula said.
An impressive record for any Scout, anywhere — only 4 percent of Scouts ever reach the Eagle Scout rank, Marlene Sekula said — but Adam’s accomplishments might be considered more impressive because Adam is an Eagle Scout with Down syndrome.
“He knows he has Down syndrome, and he understands he’s different,” Marlene Sekula said of her only child. But she said that has never stopped her son from accomplishing what he has set out to do.
“My expectations of him aren’t any different than I’d have of any other child,” she said.
Marlene Sekula said those expectations are true in Scouting, too. She said the only special consideration Adam has received as a Scout was when he was allowed to use a paddleboard for a 100-lap swimming requirement in order to advance in rank.
Adam not only accomplished his goal, but within months was able to do 100 laps without the board.
He doesn’t take the easy path.
Adam Sekul16 Frankfort recently completed his Eagle Scout project. | Brett Roseman~Sun-Times Media
Adam has set himself apart in Scouting from his early years as a Tiger Cub with Cub Scout Pack 101 in Frankfort Square. When he “crossed over” to Boy Scout Troop 237 as a fifth-grader, he was named Pack 101’s “Outstanding Cub Scout of the Year.”
“I didn’t tell him he had to” join Boy Scouts, Marlene Sekula said.
She knew there would be some real differences between the parent-run Cub Scouts and the more rigorous requirements of the Boy Scout troop, but “I had to give him some choices,” she said.
“There was no question on Adam’s part. I thought he wouldn’t stick with it, but he loved it. Every Monday night, he’s dressed and ready to go,” she said.
When the opportunity came for Adam to earn the rank of Eagle Scout, there was, again, no question in his mind. He was going for it.
Bob Cupp, Adam’s Eagle Scout project coach, said Adam is “very task-oriented.”
“He wants to see the job through and make sure it’s done right,” Cupp said. “Adam has learned to roll with different levels of difficulty put in front of him. He knows when to look for help, either to get an answer to a question or to point him in the right direction.”
Cupp said Adam doesn’t ask anyone to do it for him.
Adam said the idea for his Eagle Scout project came about when he asked Harold Osterreich, an elder of his church, Immanuel Lutheran in Mokena, if there were any projects he could take on.
Osterreich told Adam the church could use a paved area around an outdoor altar, a place where people could stand comfortably during religious ceremonies.
Adam ran with the idea, working with Cupp to raise money, plan and complete the project, directing 44 Scouts, friends and family in a 225-man-hour project.
Cupp said when it came time to do the project, Adam “oversaw, ordered and found the kids to do each job.”
“Sometimes he got caught up in the project,” Cupp said. “But he did a great job of keeping everybody going.”
Adam’s drive to do his best has been apparent all through Scouting, from his active participation in service projects to taking on leadership roles.

Adam Sekul16 Frankfort recently completed his Eagle Scout project. | Brett Roseman~Sun-Times Media
His talents and determination are apparent in other areas of his life, as well. He has earned Special Olympics medals in golf, volleyball, basketball and other sports through the Lincolnway Special Recreation Association, and he is part of the Best Buddies program at Lincoln-Way East.
Still, scouting is Adam’s “passion,” Marlene Sekula said.
He plans to stick with his passion, eventually working up from his rank as junior assistant Scoutmaster.
“He’s very determined. I used to call it stubbornness, but it’s a determination,” Marlene Sekula said. “He wants to get it done.”


Be gentle.

Friday, November 2, 2012

Step Up for Down Syndrome!

Step Up for Down Syndrome!  Are you gonna step up?  Our family will be there.  Hope to see you too.


Step Up for Down Syndrome


Event Information

Event Info:
This is your big chance to give back! DSIA needs your help raising funds to continue our programs and outreach into 2013 and beyond.
Your participation not only increases awareness and celebrates hope, it also ensures that DSIA will be able to continue to provide support, education, resources, and much-needed (and loved!) events to our community.
'The Step Up walk is a blast! We love coming to hang out with our friends and family, and every year we make new friends. The best part… by raising money to support DSIA, I know we're supporting the Down syndrome community as a whole.' – A Local Mom
Event Location:
William Land Park, Village Green (at the corner of Sutterville and Freeport)

Need directions? Click here for a map
Event Schedule:

Day of Registration11/3/2012 9:00 am - 10:00 am
Event Begins11/3/2012 10:00 am - 10:30 am
Walk Begins11/3/2012 10:30 am - 11:00 am
Lunch11/3/2012 11:00 am - 12:00 pm
Fees:
Adult Registration (ages 11 and up): $15.00
General Registration - non refundable, add $5.00 late fee after 10/21/2012
Child Registration (ages 10 and under): $8.00
General Registration - non refundable, add $2.00 late fee after 10/21/2012


Be gentle.

Monday, October 15, 2012

Special Olympics Soccer Championships 2012

It's that time of year again.  Saturday was the Northern California Special Olympics Championships.  And I am proud to say that the Galt Chiefs Team 2 earned a SILVER medal.  Congratulations to the athletes (and the coaches) for all of your hard work.


 "Let me win. But if I cannot win, let be brave in the attempt."










Be gentle.

Saturday, October 13, 2012

Did I mention I love my son's school program?

I love Davey's program at his middle school.  I love his teacher and aides.  Davey is treated like one of the 7th graders.  Not a 7th grader in a special program at a regular school.  Davey is treated like a typical kid, allowed to make friends, learn and grow.  The fact that Davey happens to have Down Syndrome is not important.  He is just a kid when he is at school, and he loves it!



I think I have mentioned before that Davey's program is a program that allows him to participate in regular 7th grade activities and classes, while tailoring his academic needs to his current level of knowledge.  He is in an enclosed classroom where he has one on one instruction in reading, math and social studies.  He attends PE, science and his elective (choir) with the "typical" kids.  One of the things that his enclosed classroom does is teach life skills, including cooking, cleaning, shopping, and interacting in public.

Yesterday, the class went to a pumpkin patch.  Davey's wonderful teacher Heidi, sent me a few photos of the day at the pumpkin patch and the fun that was had by all!

Enjoy these beautiful smiles.







Be gentle.


Sunday, September 30, 2012

A most interesting person

Inspiring young woman.............



Most Interesting People: Down Syndrome not a disability for Bergeron


Bergeron.jpg
ANGELICA A. MORRISON

Carrie Bergeron of Rome performs a song in sign language, Monday Sept. 24, 2012. Bergeron is an advocate for people with Down Syndrome and other disabilities. Her first language is sign language and she often sings songs in sign language for various programs. She has been chosen as one of the Mohawk Valley's Most Interesting People.



After you meet Carrie Bergeron, you may feel more affection for tomatoes than you thought possible.
More about that later. But first about the easy-going, blonde-haired, blue-eyed 36-year-old Bergeron.
The Dolgeville native has a black-belt in karate, works with children with disabilities and teaches the elderly tai-chi. She loves to interpret motivational songs through sign language, which she does with special grace.
She’s traveled the country to change people’s minds about what a disability is, because everything she’s accomplished she’s done not in spite of, but with Trisomy 21, also known as Down syndrome.
“All of us with disabilities can do anything they want in their own way,” Bergeron said, sitting in her apartment just off Black River Boulevard.
Bergeron and others with the condition are born with an extra chromosome in their DNA, which can manifest itself in numerous ways.
When she was born, Bergeron had a hole in her heart, a rip in a heart valve, and in her words, “a big tongue and a wobbly head.”
She lives independently in the tidy Rome apartment, but gets help from care staff with transportation, and keeping track of her diet and exercise. The metabolism of people with Down syndrome is 70 percent slower than the average adult, so Bergeron eats organic controls her portions and exercises daily to keep her slim form. Individuals with Down syndrome often have problems with their joints, some have trouble speaking and learning. Bergeron had heart surgery when she was 1 year old to repair the muscle, but otherwise didn’t know she was different than anyone else.
By the sixth grade, though, she noticed she had trouble keeping up. Other students noticed she was different, too, and she was teased a lot.
“I just walked away. I didn’t show my weak spot,” she said, her voice tightening. “I just waited until I got home and burst into tears.”
After her parents intervened, she said, the school started teaching about Down syndrome and what it means. That experience, while painful, is part of the reason Bergeron has traveled the country speaking about Down syndrome.
“Not only do I speak, but I get to meet new people,” she said. “It feels good.”
But first she graduated high school, spent a post-graduate year at BOCES and earned a certificate in early childhood education from Herkimer County Community College.


Now she works part time with children at Upstate Cerebral Palsy. Her mother, Peggy, a retired school teacher, is her inspiration.
“I work with toddlers with special needs,” she said. “I interact with the children, I make sure they’re safe and they’re not getting into trouble.”
Now, about that tomato.
Bergeron has written a story, which she printed on greeting cards she sells, about when she was frustrated by her disabilities.
Her father, Tim, told her a story about his garden the year she was born and a particular tomato that got his attention. It had a large juicy bump on one side. At supper, while the tomato looked different, it was just as juicy as the others.
“My dad tells me that even though I have more difficulty learning than my brother and sisters, my loveable and outgoing personality and strong character make me just as special as they are. I guess I am the special ‘tomato’ on our family’s bush!”
Profile
Age: 36.
Residence: Rome.
Occupation: Works part time with children at
Upstate Cerebral Palsy.
Interesting fact: She’s a black-belt in karate,
works with children with disabilities, teaches
the elderly tai-chi, loves to interpret motiva¬
tional songs through sign language.


Be gentle.

Friday, September 21, 2012

Just dancing and rocking that extra chromosome!

Saw this video and just had to share.  Pretty music and fantastic dancers rocking their extra chromosomes.

Be gentle.

Tuesday, September 18, 2012

Ted, the Reds bat boy for a day, rocks his extra chromosome

As you know, I am a huge baseball fan (Go SF!).  I am always inspired by teams that give back to the community.  The Cincinnati Reds have given back one young man that has dreams of being a bat boy.  This story just makes you smile.


In a Reds season of mostly sweetness and light, maybe the sweetest and lightest thing of all happened on Aug. 17.

Reds manager Dusty Baker fist bumps with Ted after their 7-3 win over the Chicago Cubs at Great American Ball Park.
Ted enjoys himself along with Chirs Heisey in the dugout. Ted stood next to Heisey on the field as the game opened up with the Star Spangled Banner.
Early on during an Aug. 17 home game for the Cincinnati Reds, guest Reds bat boy Ted Kremer went out to retrieve a bat. On the way back to the dugout Ted gave Reds second baseman Brandon Phillips a high five as Phillips headed to the plate. Phillips was all smiles at bat as Ted continued on his way to bat rack. The Enquirer/Jeff Swinger
REDS
Reds equipment manager Rick Stowe made a deal with Ted that he could take off his helmet when the Reds took the field as Ted hung out in the dugout. / The Enquirer/Jeff Swin
A young man with Down syndrome who really wasn’t supposed to be the batboy – not in the typical sense of the word, anyway – put some spring in the Reds’ steps.
The remarkable thing wasn’t that Teddy Kremer retrieved bats and foul balls and brought baseballs to the home plate umpire, it is that he did it with such aplomb, gusto and unbridled joy.
“They all could tell that Teddy is a guy who never has a bad day. How can you not love a guy like that?”
But if you know Ted – that’s what he likes being called, even though everybody calls him Teddy – it wasn’t remarkable at all.
Teddy was just being himself.
When Cheryl gave birth to Teddy, she was told the next day by the doctor that her son would likely never smile, probably wouldn’t talk, might not walk, and would never have more than a 40 IQ.
Those were tough words to hear, but Cheryl and her husband, Dave, were both in education, and they weren’t about to let what somebody said turn into a self-fulfilling prophecy.
By two weeks old, Teddy got occupational therapy at the pediatrician’s office so that he wouldn’t be floppy-legged. By five weeks, he was exposed to music at the Breyer School in Colerain Township, to which he clapped his hands, and looked in the mirror and was taught to look up, to strengthen his neck muscles.
By 13 months, he was in speech therapy, and soon he was matching colors and being taught to play with toys. Shortly after that, a teacher told the Kremers to “take him out, because Down syndrome kids mimic what they see, and if they don’t see it, they aren’t going to progress.”
By age 3, he was included in the regular classes at Mercy Montessori in East Walnut Hills, and he began swimming. And, oh, did Teddy Kremer progress. He walked, he talked, he smiled broadly. His personality began to emerge. By 7 he was swimming for the Mercy team.
At 16, he enrolled at Colerain High – again, in classes right along with the other kids, math and science and social studies and home economics and keyboarding at the vocational program – and competed on the swim team (“freestyle and backstroke,” he recalls, proudly) and was named student-coach on the teams for baseball and football, including the state grid champions in 2004. He rides horses on Monday nights, plays softball on Tuesday nights, does ballroom dancing on Wednesday nights, swims on Saturdays.
“I’ve always been around athletes my whole life,” he says.
He does clerical work three days a week at Hillcrest School in Springfield Township. He reads The Enquirer, follows closely the local sports team, knows as much if not more about them than anybody. He’s a diehard, easily reduced to sobs by an ill-timed loss.
So, when his parents attended a fundraiser last March at Mercy Montessori where the children of Phil Castellini, the Reds chief operations officer, attended, and they saw that one of the silent auction items was a night as a Reds batboy, they couldn’t resist.
Yes, the opportunity was listed for “age 15 to 19.” They asked Castellini if Teddy might be considered.
“He’s 29, but he acts like he’s 15 sometimes,” Cheryl explained.
“Put in your bid, and if it wins,” Phil promised Cheryl, “we’ll make it happen.”

'HOW CAN YOU NOT LOVE A GUY LIKE THAT?'

On Aug. 5, the Kremers were asked to come to Great American Ball Park so that Ted could meet Phil Castellini and Reds equipment manager Rick Stowe.
Before that, Stowe had met with Castellini’s executive assistant, Diana Busam.
Stowe is a warm, effervescent, fun-loving guy, but he’s also steeped in the rituals of the clubhouse and dugout, and he wondered aloud about the wisdom of injecting anything offbeat into it. The Reds had done honorary batboys before games, but rarely during it, maybe once or twice a year tops, he told The Enquirer.
“C’mon, Diana, we’re not going to start a three-ring circus out there, are we?” asked Stowe. “We’re in a pennant race.”
“Let’s just see first,” Busam replied. “Let’s meet him and see where we are.”
Luke Stowe – Rick’s son and the team’s regular batboy – gave Ted a tour of the stadium. They happened upon one of the Reds broadcasters.
“Oh my God – Jim Kelch!” blurted out Ted, giving Kelch a hug.
Ted also met Marty Brennaman.
“You look pretty good without hair,” Ted told him.
Ted walked by the Reds’ video room and saw a familiar face inside.
“Hey, Brook Jacoby!” Ted exclaimed, giving him a hug.
Luke gave Reds officials – including his dad – the big thumbs-up on Ted as batboy.
Meanwhile, the Reds players wanted to know, hey, who’s the new kid on the block?
“Teddy already knew everybody, apparently from what he’d read and seen on TV,” Rick Stowe said. “Drew Stubbs fell in love with him. Todd Frazier, Brandon (Phillips), Wilson Valdez, Heisey, Bruce, Votto, Dusty (Baker). Everybody. They all could tell that Teddy is a guy who never has a bad day. How can you not love a guy like that?”
Ted was outside the Reds clubhouse talking to Phil Castellini when another man approached. Cheryl Kremer didn’t recognize him.
“Mr. Castellini!” Ted exclaimed, holding out his hand and introducing himself to Bob Castellini, the Reds chief executive officer.
“You’re doing a great job with the ballclub,” Ted told the Reds owner.

ENJOY LIFE, BE YOURSELF AND PLAY HARD

On the night of Aug. 17, the Kremers returned to the ballpark. Dave and Cheryl didn’t know quite what to expect.
Ted had a few questions.
“Mr. Stowe, do I have to wear this helmet?”
Rick Stowe: “How about this, Teddy? I’ll make you a deal. You wear that helmet when we’re up to bat. When the other team’s batting, you can sit on the bench with the players, and you don’t have to wear the helmet.”
During the national anthem, Dave and Cheryl stood with hands over thumping hearts as Teddy stood between Reds manager Dusty Baker and outfielder Chris Heisey outside the Reds dugout. The Kremers watched as Ted mistakenly removed his Reds cap with his left hand and held the cap over his heart.
“The other hand,” Heisey said softly, as Ted picked up the cue and moved his right hand to the cap, and repositioned it over his heart.
On his right arm was a black wristband, a gift from Todd Frazier.
When it came time to go out for the pregame meeting to exchange lineups, Dusty Baker didn’t tell Teddy what was up.
All he said was, “Bring these four balls to the umpire, Teddy.”
And that is how Ted found himself at home plate, with Baker’s arm around him and Baker introducing him to the umpires, shaking their hands one-by-one, a big grin on his face. Ted’s parents looked on in wonder.
Early in the game, Ted went out to retrieve a bat. Who should pass Ted on the way back to the dugout than No. 4, Brandon Phillips, on his way to the plate. Ted gave him a hard high five, causing Phillips to bat with a grin as Ted continued on his way to bat rack.
Whose bat was it, Ted? Ted mentally flipped through the Reds batting order that night, which was the order so many nights when Votto was out with a knee injury.
“Let’s see,” he pondered. “Cozart ... Stubbs ... Phillips. It was Stubbs’ bat, the second hitter.”
Later, Phillips explained his delight over Ted’s exuberance.
“People are blessed in their own way,” said the Reds second baseman. “Teddy came in here and blessed us with his energy and his presence that day: Enjoy life, be yourself, go out and play hard. Give it all you got. That’s Teddy. He’s a reminder to us all.”
When Frazier hit a towering home run in the fourth inning to score Bruce, Frazier circled the bases and, upon entering the Reds’ dugout, bellowed, “C’mon, Teddy, give it to me!” And player and batboy exchanged a big hug.
Reds pitcher Mike Leake came down to the clubhouse to get something during the game and ran into Stowe.
“I’ve only got a second,” Leake told Stowe. “I gotta get back to Teddy.”
With two outs to go in the top of the ninth and the Reds leading 7-3, Teddy began to applaud at the prospect of certain victory. Joey Votto, in uniform but out of action with a knee injury, sat down next to Teddy.
“We wait until we get three outs before we count this one as a win,” said Votto, gently.
Teddy took the hint and waited for the final out.
And what did Votto tell you then, Teddy?
“He said, ‘I love you, Ted. Thank you for everything.’ ”

POWERADE AND BUBBLEGUM

Years from now, Reds players will remember the Cuban Missile emerging as their closer, rookies Todd Frazier and Zack Cozart having their coming-out parties and the Reds’ five starting pitchers somehow miraculously not missing a turn. The player will also remember a 22-3 stretch, much of it while Votto was out.
But they’ll remember something else, too. They’ll remember the night they met Teddy Kremer.
“He’s always smiling, always joking, always having fun,” Heisey says. “Everybody likes being around somebody like that. He’s cool. I wish he’d come back more.”
The Reds, who were down 3-1 going into the fourth inning, went ahead 6-3 on home runs by Ryan Ludwick and Frazier, and back-to-back extra-base hits by Cozart and Stubbs. Jay Bruce added an insurance homer in the fifth. Jose Arredondo, Jonathan Broxton and Aroldis Chapman closed out the quality start by Bronson Arroyo.
Teddy knuckle-rapped with manager Baker, who pulled the lineup card from the dugout wall – the card by which Baker manages the comings and goings of both teams’ players – and signed it, “To our good luck charm, Teddy Kremer. – Dusty Baker,” and handed it to Teddy.
Teddy was exhausted. All those steps up and out of the dugout to retrieve bats and balls had taken their toll.
And three weeks later, the experience was clear.
“The players,” he answered, when asked what was his favorite memory.
Anything surprise you?
“The fans cheering me on.”
Favorite thing in the dugout besides the players?
“The Powerade and the bubblegum.”
When Ted’s parents got home from the ballpark that night, they noticed their necks were quite sore. All from trying to keep up with Teddy’s moves.
“Nerve-wracking,” recalls Cheryl. “We didn’t know he was going to be doing any of that. It was amazing what the Reds let him do.”
And, yet, Teddy had been relaxed as could be – well, at least after the national anthem. After the anthem, it was like being back on the Colerain sidelines with Coach Kerry Coombs.
From the end of that night, Teddy remembers one final exchange.
“Mr. Stowe, I want to thank you very much for having me down here. I had a great time.”
“I guess you did, Teddy, I guess you did,” responded Rick Stowe.
“But not as great a time as we had.”


Be gentle.